The Port

The latest medical drama is that Amani's port doesn't seem to be working. We spent over four hours at UCSF on Monday trying to get his chemo. In the end, they had to put an iv in his hand! We had the port put in so that he wouldn't have to go through that. It was very sad - but as always, he was an excellent sport. The nurses joke about how hard it is to get him upset. We are actually on another iv chemo break until September 8th. He is weaning off the prednisone right now, and is down to only 2mg a day. He will stop completely until the 8th, and then will be on 20mg per day for 5 days, every three weeks. I have labeled the calendar in multiple colors so I won't forget which medication comes on what day and in what dose. He will remain on an antibiotic every Friday, Saturday and Sunday for many more months. He will get a CT scan in December to make sure that his treatment has worked. At that point we can start addressing the fact that the little guy isn't growing. The chemo has made him gain weight, but he really hasn't grown more than a half or quarter inch in the four months he has been home. But, that will be looked into at a later date!

Here is a photo that needs no more explanation than to say, "the boy has three sisters!" And boy did those sisters have fun with this Amani photoshoot.