I will write more soon, but I will leave you with a few photos.
Saturday, June 20, 2009
So Much to Report!
It has been quite awhile since I last posted and so much has happened since then. The biggest news is that Amani started chemotherapy yesterday. He also had surgery to put in a port to make the process easier for him as his veins are small and very hard to get an IV into. We will be going to UCSF once a week for IV meds and have a number of pills and liquid medications we have to give him three times a day at home. His official diagnosis is LCH or Langerhans Cell Histiocytosis. It acts like a cancer, is treated like a cancer, but isn't a cancer. I haven't quite figured that one out yet. It is very rare. He has it on his scapula and his skull. It eats holes in the bone. The prognosis is very good - there is just a chance that it can become very chronic for awhile and need ongoing treatment. We are hoping to kick it the first time.
I will write more soon, but I will leave you with a few photos.
I will write more soon, but I will leave you with a few photos.
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7 comments:
What gorgeous long eyelashes Amani has!!!! Cute as pie!!! Glad to hear things are going well!!
thanks for the update, hollie. we have been praying for you guys!
The kids are so cute! It breaks my heart to see little Amani going through so much. We are praying for a speedy and successful treatment and recovery.
What a cutey you have! I am praying for Amani and your entire family. So glad everything is going well with his treatment.
Blessings,
Julie
Hollie, he's so beautiful!!! You guys are going to beat this ... so sorry he's little body has to go through so much. Thanks so much for the updates and the pics ... Amani is absolutely amazing!
Glad for the update! He is just too cute. We think about you guys and hate that Amani is having to go through all of these medical procedures. Keep us updated!
He is just beautiful. Praying daily for your baby and your family!
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